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NHS make cystic fibrosis “wonder drug” available

A life extending drug for cystic fibrosis is to be made available on the NHS.

A deal has been made with the manufacturers of Orkambi after lengthy negotiations.

The drug, made by Vertex Pharmaceuticals, improves lung function and aids breathing difficulties.

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It can be given to patients as young as two-years-old.

American based Vertex initially wanted £100,000 for each NHS patient.

But a compromise has been made with NHS England.

Orkambi doesn’t help all cystic fibrosis patients, but it’s estimated half of Britain’s 10,000 suffers will benefit from its use.

Cystic fibrosis is a genetic condition.

Simon Stevens, NHS England chief executive, said the deal was “good for patients and fair to British taxpayers”.

David Ramsden, of the Cystic Fibrosis Trust, said:

“This is a very special day and I want to thank people with cystic fibrosis, their families and everyone who has been part of this campaign for their persistence and determination to keep on fighting.”

 

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